usher syndome

General News

NGO advocates Global Usher Syndrome Awareness Day

Lionheart Ability Leaders International Foundation, an NGO, on Tuesday in Abuja, advocated 3rd Saturday of September every year for Global Usher Syndrome Awareness Day. The Executive Director of the NGO, Mr. Solomon Okelola, made the call after a roadwalk organised with the collaboration of “The Usher Syndrome Coalition.”. Okelola defined Usher syndrome as a rare genetic disorder caused by gene…